Hiya, our big boy turned 2 last Thursday! Massive thanks to all those who sent cards and pressies for him, he had a great day. We had a quiet morning while he played with his new toys and his Grandma & Grandad came round for lunch and a bit of birthday cake, then in the afternoon we took Patrick, Isaac and a couple of friends to a local clay studio where the kids painted their own ornaments and Patrick was able to do a bit of foot printing which he loves (he has very ticklish feet!).
Patrick has nearly gone for 6 weeks without any seizures now so that is great news. He is doing fantasticaly well, becoming more and more vocal and is now able to make a few more sounds. He's nearly mastered the 'M' sound so I have a little hope that he may say 'Mummy' one day.
We've been busy busy as usual, went to see another school yesterday that Patrick could go to, Victoria Education Centre. We didn't think we would find a better school than Langside that we went to see back in December but we're pleasantly surprised. This school is much bigger with more children with more varied levels of disability. We really liked the friendly, buzzy atmosphere and think that Patrick would fit in well there. We have a couple more schools to see and must get the statement process in place but that all takes time. We know we have to get it started now though as we want him to start in September.
This afternoon I have an appointment with Patrick's speech and language therapist to look as his drinking, hopefully she can help make it easier. Patrick's physio, OT and portage worker have all seen him since he stopped fitting and they have all noticed a big difference in his alertness and concentration. He's more interested in his toys now and is trying much harder to explore them. He's just started rolling over to the right as well which is progress, he can't quite make it right the way over yet but is trying. Unfortunately as he is still on all the medication he is still a very sleepy bunny, he usually goes straight back to sleep after breakfast and can be out for the count until 1pm! We have appointments with his neurologist and his assesment for the keto diet next month so I hope that we can eventually start weening him off some of his drugs.
We managed to get an EEG done a few weeks ago so hopefuly that will show if there is an improvement there but we wont get the results until we see Prof. Kennedy in a few weeks time.
For those of you who are on Facebook, Patrick has a new news group! Patrick's progress. Facebook is great as I can upload loads more photo's and video footage and I can send e-mail updates to all group members making it easier to keep you all updated and also it makes it easier for you leave us messages. So for anyone who's not on facebook already, sign up! I will still be updating the blog so you wont be left out so don't worry.
That's about it for now, I'll update in a few weeks when we've seen the neuro's.
Take care, Gemma xxx
