All is calm....

Hiya,

Just a quick up-date as nothing much to report. Patrick is doing really well at the moment. He seems to be responding well to his meds and is only having one infantile spasm a day that is very mild so that is good. He is still having loads of focal seizures though but these are easy to cope with (for us at least) as they only effect his face, he turns his read and rolls his eyes and his mouth goes funny as if he's chewing his tongue but this only last about 30 seconds then he's fine again and it doesn't distress him at all. This may get a bit worse as he gets bigger and starts getting teeth but we'll deal with that as and when we need to.

We were back at Southampton yesterday to see the Neuro's and they've decided to start weaning him off of the Sodium Valproate (Epillim). That is the only drug he's been on from the start so considering that he was still fitting really badly while on high doses of that it should be safe to assume it's not really doing much so hopefully wont make much difference once he starts coming off it. It should hopefully mean that he might me a bit less sleepy which would be great. He is very sedated at the moment and this will effect his chances of developing properly so it's important that we try and sort that out.

As for his development at the moment, he seems to be doing very well. He is really smiley and happy all the time when he is awake which is great. He has an appointment at Bournemouth hospital next Friday to have his eyes tested so fingers crossed for that. I'm not sure on his vision at the moment, sometimes I'm sure he's got good sight as he seems to fix and follow well but when you watch him laying with his play gym he never seems to be looking at his toys just hitting out randomly in the hope that he'll hit one, it's difficult to say really so I'll be glad to finally know for sure next week.

Anyway, that's about it, keep fingers crossed for our baby boy as he comes off the drug, hopefully he'll be fine but there is a chance he'll regress a bit. We'll keep you up-dated over the next few weeks so you know how he's doing.

Take Care, Love Gemma xx