Knowing how we all worry when we don't get any news, Martin and Gemma have asked me to post this update for them and to pass on their apologies for not updating sooner but as you can appreciate they have been pretty busy and to be honest there hasn't been much to tell as there has been little change in Patricks condition.
Patrick is still having seizures and though they are less frequent they are lasting longer. He is having about 9 clusters a day on average and they still appear to be quite painful. The doc's have now decided to withdraw the new adult drug (Topiromate) that they put him on and reintroduce the anticonvulsant (Vigabatrin) although this can only be used in the short term (max 2 years) due to the possible side effects.
Martin, Gemma and the boys want to thank everyone again for all the love and support and will keep you posted on Patricks progress.
No comments:
Post a Comment