Just after I finished the post for last night, I spoke to Gemma and she told me that Paddy had just had a fit! Not too bad it seems but I must have spoken to soon.
He had another at 03.00 this morning and then another couple by the time Isaac and I arrived just before ten am. While Gemma was out with Isaac, Patrick had a little sleep and was then awoken by some strange facial movements and then body jerks with some vocal activity too. I am not sure if it was a seizure but it certainly wasn't normal behaviour and the nurse on duty agreed.
He was a good boy and took two bottles while I was there and as I settled him down for a sleep, he had a seizure more like the ones prior to the vigabatrin and he was screaming with each spasm! Not a good sign but it is still early days with the Vig Drug so let's keep our fingers AND toes crossed.
News as it happens.............
Martin, Gemma et al
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