A Good Week

Hiya, had a busy but good week this week. I took Patrick to his first group physio session on Tuesday which was good, he got a bit upset when he had to do his stretches, especially his leg one's, it would seem we need to do a bit more work on his legs as his muscles are obviously quite tight. There were three boys in the group, the other two had cerebral palsy and although they were the same age as Patrick they were both about half the size, I'm not sure if they were under-sized or if Patrick is over-sized but I think it's the latter as Patrick is a bit of a chunk!

Yesterday was a great day as we took Patrick over to Julia's House, Isaac had an inset day so he could come with us which was good for him, he's not been to Julia's House before, only heard about it from when we've taken Patrick before and he gets pretty jealous and has actually said that he wants to be disabled because it seems like Patrick gets all the fun! He clearly doesn't quiet understand what it means to be disabled which is fine. Anyway, as soon as we got to Julia's House the staff there made a real fuss of Isaac which was brilliant, they took him off to the play room and he came out half hour later having made about half a dozen Easter baskets filled with sweets! Patrick was pretty sleepy all morning, we left him at Julia's House so we could spend some quality time with Isaac. We took Isaac to an indoor play centre just down the road and then went for lunch. We really had a great time, it was so nice just to be able to concentrate our attention on Isaac for a few hours. It was the first time we have left Patrick on his own at Julia's House and he was fine, he actually slept all morning and woke up just as we turned up to pick him up! It was nice because I thought I might be a bit anxious leaving him there but I wasn't at all. There are so many lovely staff to look after him, they allocate one carer to each child so he always has someone with him and there are usually more carers around so he gets loads of attention and cuddles which is really all he needs. It was really good to see how Isaac reacted to the other children at Julia's House, it was quite busy there yesterday with lots of young children with various degrees of disability. You would think that Isaac might be a little bit phased by it all as although he's used to Patrick being disabled, Patrick doesn't look poorly like most of the other children. I was so proud to see that Isaac really wasn't phased one bit, he was interested and concerned for all the children, especially a little girl who is totally blind, and he sat next to another little girl as she lay on the floor being tube fed and chatted quite naturally. I think all this experience will make it so much easier for him to deal with anything that Patrick may or not have to go through in the future.

By the time we got home Patrick's new positioning chair had been delivered. It's fantastic, called a Bee chair (for obvious reasons). It's much better for him than the one he has been using, he just looks so much more comfortable in it. Hopefully his new buggy should be ready within the next few weeks then he's sorted.

Well, it's now Easter holidays, we've not really got much planned, Patrick has a few appointments over the next couple of weeks so we can't really go anywhere. We have taken out club membership of a local holiday park just down the road. We thought it would be good as we want to take the boys swimming. The local swimming pools are always busy and you are so restricted to when you can go because of the swimming schools, so now we have membership to a holiday park that has a really nice indoor and outdoor pool, open all day every day and during term times the pool is usually totally empty. We will be able to take the boys any time we want and have the luxury of the quiet, and space. Also, we plan to use it as a place to go to relax, we can get Patick's carer to sit with him for a few hours while Isaac is at school and Martin and I can go and make use of the pool, which also has a jacuzzi, sauna and steam room. We can also make use of all the other park facilities including the kids club and evening entertainment so it gives us something to do on a rainy day and through the summer if we're not able to get away much.

So, that's about it really, I'm sorry if I've rambled a bit, it's becoming a habit!


I hope you all have a great Easter break.


Take Care, Love Me xx