Had a great 2 weeks as Isaac was on his school holidays so we were able to have lots of quality family time. We've been swimming lots with Isaac, Patrick has been once and he seemed to enjoy it but was a bit too tired to appreciate it properly.
On Saturday we went over to Montecute School in Poole to take part in a 'fact finding' event laid on by coping with chaos. The government have given the whole of Dorset around £4 million to spend over the next three years on short breaks for families with disabled children, this could be anything from a 2hr restpite at a leisure centre to a week long family break. There was loads for the kids to do and Isaac had a great time, there were clowns and jugglers, a disco and bouncy castles and while Isaac played, we had to join in a group discussion and say what we would like the money to be spent on. It was well worth attending and it will be interesting to see what the outcomes are.
We were over at Julia's house for their toddler session yesterday, we were able to take Isaac as well as he had an inset day. As soon as we walked in Isaac was kept busy and more or less given the run of the place, he was dressed up as a Pirate and hunting for treasure in the sensory garden, it was just great to watch him having so much fun. Patrick actually stayed awake for the whole morning which was a first so he was able to play with the toys and enjoy his surroundings, he's always made a fuss of when we go there so he's really relaxed there. These toddler sessions are also a great way of meeting other parents in our situation, you can share experiences and pick up tips which is always use full.
We have several appointments coming up over the next few weeks, we're seeing Fiona, Patrick's Neuro on Thursday and then his MRI scan is next Tuesday 15th (it's been brought forward). He then has an EEG scan on 25th. He's doing really well at the moment, his fits are still very mild and he's only having up to 6 a day. He's made real progress rolling over now which is great, more often than not now he will roll right over from his back onto his tummy which is brilliant. He's still struggling to pull his arms out from under him so he gets a bit stressed out but the more he does it and the longer we leave him to struggle each time, I'm sure he'll keep getting stronger, it sounds a bit harsh to watch him struggle but if we jumped in and sorted him out every time he's never going to learn to do it himself. His grip seems to be getting a bit stronger as well now and he's showing a bit more interest in holding things, if we can get him holding things that will make a massive difference to his development I'm sure.
We're not getting Patrick's new buggy for another couple of weeks now, after chasing it up I've been told that as we're having it modified a bit they need extra parts which is holding it all up. We should have it by the end of the month anyway.
We're really looking forward to this coming weekend as we're having some very special visitors. Over the last few months I've built up a friendship with Karen who has a son called Luke who is just like Patrick only a couple of months older. We met via a networking website and she and her family are coming down to meet us this weekend. It will be really great to meet face to face and share experiences. It will be nice for Patrick to have a play mate and Luke has an older sister the same age as Isaac too. I'm sure there will be lots of photo's going on here soon.
Anyway, the supermarket beckons so I must get on, I'll update after Patrick's consultation on Thursday. xx
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