It's official, Patrick is now famous in the USA! Well, maybe I slightly exaggerate but a very great lady called Beth who's son Ben is Epileptic took part in a charity walk for Epilepsy and as you can see from the photo's Patrick got a mention on her t-shirt, (on the right side of shirt) how amazing is that?! Beth raised $2500 dollars for Epilepsy research which is a fantastic achievement. Martin met Beth online through one the Infatile Spasm news groups he's a member of, these groups are a great way for us to find out about other people's experiences, medication and new equipment eg. The Waterway Swimming sytem mentioned in a previous post. The pictures below show Beth's t-shirt which she used, in her own words, to 'Honour' all of our children. There are many kids from the USA mentioned on the shirt as well as a number from outside the US too. One of the pictures shows Beth's gorgeous son Ben and another little Infantile Spasms Champ - Rohan! Well done to everyone who took part in the walk - you are all Champions in our eyes! This is a good reminder that we are not alone in our journey alongside Patrick and there are other kids dealing with similar challenges to his. Well done Beth and thanks from all of us here, especially Patrick xxxxxx
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