Unfortunately there's going to be a bit of a delay in us getting Patrick's MRI results. When we turned up for our appointment at Southampton today we found out Patrick's neurologist had been trying to contact us all day to let us know she hadn't been able to view the scan results yet. She is now off for a break so we've arranged to go back in May when she's back and has had a chance to look at them.
Fiona was able to give us some good news though, Patrick's EEG results showed an improvement. Every previous EEG has shown seizure activity and constant 'background activity' that they haven't been able to explain, but from what we understand any kind of background activity would have an effect on Patrick's development and ability to focus. What they can see now is that Patrick's EEG is nearly 'normal' but he still has bursts of background activity. We can only assume that this improvement is due to his medication and the fact that his seizures are now fairly under control. Having said that, Patrick's seizures have been getting stronger over the past week, I don't think that it's because we are reducing his vigabatrin as I believe they were starting to get a little stronger before then. I actually think there's been an improvement since reducing the vigabatrin, Patrick has been really interacting and has been more vocal over the past few days, he's a happy little boy at the best of times but he's been even more so the last couple of days, even Fiona managed to get a giggle out of him today, she said it was the best she's seen him. We've decided to up his Carbamazepine a little bit to see if that calms his seizures again so fingers crossed.
Anyway, it's been a long day so I'll keep it short and of course I'll let you all know when we have the MRI results. For now we can relax for another couple of weeks before the nerves start to kick in again.
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