Patrick came off the thiopentone yesterday and we were hoping that the Neurologist's confidence boded well but sadly Patrick fitted twice overnight and we are not sure what the next step is now.
Sounds encouraging that he only fitted twice but as we have seen before, he displays physically now and then but has been fitting constantly in his brain. We have not had another EEG yet and don't suppose there will be one before monday but we are both a bit disheartened to be honest.
We had hoped that the change of medication might have done the trick but if I am honest, I am not even sure what the trick is now. All we can do is wait and see what the neurologist decides. We now have a different Neurologist as they change them regularly. Maybe this will mean a new set of eyes will see something differently. That is what we are hoping and not because we are dissatisfied with the previous Neuro but just because we want our baby home. Soon.
Will update later
Love from all of us here
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