Encouraging News

Hiya,

Not too much to report as Patrick has still been in his coma but we have had some encouraging news. Patrick had an EEG done this morning, they wanted to get a good look as his brain while he was still in a coma to see if they had managed to stop the seizure activity as this could sway their decision to wake him up. We had the results back this afternoon and thankfully it showed that he was in a restful state of deep sleep with no sign of any seizures which was a relief and just the result they were hoping for. We are trying not to get too excited as it is still very early days but hopefully the stronger medication and new combination has started to have the desired effect and for now they have managed to control the seizures. They withdrew the Thiopentone (Anaesthetic) at about 3pm so the next 24-36hrs will be nail biting as we hope he will slowly wake up without having any seizures.

I was reasured again today that Patrick is recieving the best possible care for his condition. I was left totally amazed when I learnt that his Neurologist has been desperately trying to source a specific drug for Patrick. I'm not sure of the name but it is an anti-convulsant that he is currently recieving orally. She had heard that in some countries this drug is given intraveinously and seems to have a slightly better result. Apparently this version of the drug is not currently available in the uk but the pharmasist is on the case and has already been in touch with people in New York and throughout Europe to try and track it down. Even if they aren't able to source it, the effort all the team are putting in is just fantastic and we really couldn't ask for any more for our baby boy.