Well, Patrick had hardly unpacked his bags from yesterday when it was decided that he would now be allowed to re-join the outside world in the General Ward! (The world outside special care that is.)
He is now on ward G1 which is a normal Paediatric care ward and it means that Isaac can get to see him again, which he did, in fact, today. Isaac is especially pleased because there is a play room with loads of toys and games and seeing as Paddy is too small/ill etc................. well, it would be rude of Isaac not to play with it all for him!
This move is great news in terms of Patrick's road to recovery and both Gemma and I are obviously very happy that he is responding so well to the treatment but the other side of this coin is that the level (not quality) of care reduces too. In intensive care he had a nurse sat at the end of his bed, 24/7. Not the same nurse obviously as they take it in turns! In High Dependency, there are two Nurses looking after 4 beds. In the general ward 1 nurse looks after a number of kids who are in small rooms and separate from each other. Pretty much.
So because we are worrying parents, we have decided that one of us needs (wants) to be there 24/7. (like the nurses, we take it in turns, silly.) There is no reason to our worrying as the staff are wonderful but we want one of us to be there if Patrick wakes up so at least he isn't just amongst strangers.
When I left this evening he was just about waking up and Gemma was just about ready to doze off so I imagine her blog entry tomorrow may have some rude words in it.
He has still not taken any food from a bottle so they are feeding him via his tube but we hope that the speech and language person will come and assess him on Monday. He is still having his meds orally too which is nice because he doesn't have to have a cannula in place. Poor little man has bruises on top of bruises where they have had to try so many different places to get blood out or medication in. These bruises should now clear up at least.
The Neurologist came by and was really chuffed with Patrick's appearance and has now decided to have the EEG done on Monday. As I think we mentioned, it was due for today but this has been postponed. I am not sure what the reasoning for that was but I trust him to know his job, so we will wait and see how that goes.
Paddy is sounding better and looking so much better than even yesterday and is still not displaying any fits. Again, whilst we are encouraged by this, it still remains to be seen what the EEG shows us before we can start whooping from the roof. (I am currently half way up the ladder, standing by for that bit of good news!)
I can't really think of anything more to say right now but have no doubt that this whole post will be edited by my lovely wife (of 5 years, today incidentally) because she writes so much better than I do and takes more notice of what actually goes on in the Hospital.
So, nighty night everyone. Keep the prayers going for my little fighter and thank you all for such loving and strong support. I tell no lies when I say that your strength has kept us all going.
Nunight Paddy and Mummy from
Daddy, Ashley, Billy and Isaac
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