Welcome back. Patrick has been seen by a Neuro again today and she felt happy that he was progressing OK. The decision has been taken to reduce his medication from this evening and having just spoken to Gemma, he seems to be more active with the lower dose.
Gemma managed to escape today and went to Southampton with her Mum, Auntie Sue and Isaac. I actually felt quite sorry for the poor unsuspecting people of Southampton and settled down to finishing Patrick's bottle. He is feeding quite well when he is in his chair and he had a good guzzle.
Once he had finished his bottle,we had some serious cuddles and he got much kissing from Daddy. About an hour later, the Physio came along and put him through his paces with movement exercises to try to increase his muscle tone. This has dropped a bit due to him being so immobile during his comas and he just has to be encouraged to move his arms, legs and head fully. At the moment, his legs are not too bad but his arms stay out from his body and slightly raised so she wants us to make him bring his arms across his chest more. Another thing that she wants us to keep an eye on is that he favours his right side with his head. Basically he lays with his head to his right and looks off into the distance. If you approach him from that side, he will track you with his eyes but he tends to just swivel his eyes in your general direction if you approach from his left. The Physio has asked us to avoid coming towards him from his right side so that he has to start moving his head to the left in order to engage with us. I noticed that he will do this eventually but he is a bit lazy with it just now and turns his eyes as far as he can and then obviously decides we are not that interesting. When I rattle one of his noisy toys from that side, he will put more effort into it! Says something about us I guess haha.
For the Medics amongst us, he currently has just one cannula in his left hand and I am guessing this is for quick access for meds if the reduction does not have the desired effect. Other than that, he just has the pulse/Oxygen Saturation monitor probes on his foot. I am not sure which med(s) has/have been reduced and to be honest, I am not entirely sure which ones he is on currently. (Gemma does all the shopping so she probably knows!)
So.... the next few days will hopefully show an improvement in Patrick's awareness and control of his body without a slip back into the seizure activity. Keep your fingers crossed and we will speak to you soon, hopefully with good news.
Love to all from
Martin, Gemma, Ash, Billy, Isaac and Paddy
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